August 13, 2010

Garrett's had a pretty good couple of weeks. He's back in school and we're a little nervous, but he's so happy to be with his friends. At the same time, he's scared he might get sick again. It's a heck of a thing for a 5th grader to have to worry about. He did give us a scare the other day but it turned out to be a false alarm. He became ill at school and was symptomatic of the same type he displayed when he became real sick early this year. We think it was just a little bug.

It's about midnight and Garrett finally fell back asleep. His nightmares are coming back and tonight's were doozies! He keeps dreaming of being in the hospital. It could be because he had a check up today. His heart function looked good and he's definitely better. We keep praying that we've really whipped it down this time. The biopsy will tell the story. But to look at him, he's nearly back to how he looked before he got sick last spring.

Tonight brings back so many memories. It's been a tradition, of sorts. Ever since Garrett was a little diaper filler, he and I have shared the tough nights by watching old NFR tapes when he can't sleep. I hate that he has these nights, so many of them over the years, but I feel so blessed to have the chance to share these moments with him.

Today the transplant team looked at some skin changes in Garrett's hands and wonder if it's late reaction to the last chemo. It seems long out from the infusion, but it's possible. We'll just have to watch it close.

As the summer starts to wind down we've glanced back at the past several months. My, how far we've come. I wish I could say we don't have any more trails to take this year, but with God's unending grace, they will be short.

More to follow.............

God bless,

JD